Moving On

Well, now that we are more 'settled' as a family of four (wow), it's time to get going on MS treatment. Yay. (Can you sense my enthusiasm?)

As I posted previously, I have started the IVIG, and it seemed to go well. It made me sick, and it has been causing me some grief with headaches/migraines and stuff, but I seem to have adjusted to it rather well, considering. My next infusion is May 1st.

I have been making a bunch of phone calls trying to get Copaxone in order. I've been speaking with a really nice lady at Shared Solutions and to the people of the Copaxone Assistance Program (CAP), and they've all been really helpful. The lady I spoke to from CAP suggested we try to get in contact with Rob's insurance company to see if they would cover some of the drug cost, as the Pharmacare deductible was quite high. If they wouldn't, then CAP would cover 80% of it. We were happy with that, and Rob got on the phone with his insurance company to try to figure things out.

Here's the results: The insurance company has agreed to cover 100% of the Pharmacare deductible!! That is GREAT news. That's a huge chunk of money that we don't need to worry about. We are VERY thankful. Now we are just waiting for them to get back to us regarding the Exception Drug Status letter that I had to send them (because Copaxone isn't a very common drug, they needed to know exactly what it was, and what it was for). Then I should be able to go pick up the prescription, call Shared Solutions to send out a nurse to help me with the first injection, and then I should be on my way.

Here's a shocker...I'm in denial. Still. I don't want to believe I have MS, because quite often, I feel okay. I know that I need to start treatment - I just don't want to. I feel like once I start, there's no going back, and I will be trapped in a life of needles and neurologists and being sick for the rest of my life. Ugh. It's hard to explain how I feel...I just don't feel like doing THIS.